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UKPID Registry

The UK Primary Immunodeficiency Registry (UKPID Registry) is an online registry of primary immune deficiency patients in the UK. It aims to provide a comprehensive picture of PIDs in the UK. The UK is one of the largest documenting centres contributing to the European central (ESID) registry of PIDs.

The UKPID registry is an essential instrument for high-quality research and ultimately contributes to the improvement of patient care. It is now established on servers based at the Great Ormond Street Hospital (GOSH) and can be accessed here.

Please note the data in this registry is SSL encrypted and stored on secure servers. You will need to login via the GOSH website to gain access.