13 July 2017
The Government has published its response to the National Data Guardian’s Review of Data Security, Consent and Opt-outs. The British Society for Immunology welcomes the publication of this report and supports plans to ensure the responsible and appropriate use of health data in research. The response accepts the proposed data security standards, which aim to ensure staff are equipped to handle data safely and respectfully, the organisations have sufficient processes in place to prevent data breaches, and that technology is up to date and secure. A full copy of the Government’s response can be downloaded here.
Health data is of huge importance to medical researchers, including immunologists, studying the prevention, causes, diagnosis and treatments of diseases. Having access to large health datasets allows research to flourish and brings about improvements to patient care. In our recent report on the life sciences industry, we highlighted the importance to the UK of having a system that allows the responsible use of anonymised patient data in health research.
You can find out more background information on this topic in the Association of Medical Research Charities’ booklet ‘A matter of life and death: how your health information can make a difference’
Image credit: AMRC